Highlights from the EBRAINS 2.0 Workshop on Sharing Sensitive Human Data

This critical question, among others, was intensively discussed at a workshop organized by Work Package 4 on November 25th-26th 2024 in Oslo, with the support of the Norwegian Neuroinformatics Node funded by The Research Council of Norway and the EBRAINS Norwegian Node.

A big thank you to the participants from 14 of the EU EBRAINS 2.0 partners, as well as from Sikt – Norwegian Agency for Shared Services in Education and Research, Services for Sensitive Data at UiO (TSD), and the EU AI-MIND project, for their valuable contributions. A comprehensive report is currently in progress.

Our ambitions is for EBRAINS to deliver high-quality collaborative platforms for research on human brain data. This involves meticulously organizing data and metadata, establishing robust standards and curation workflows, and addressing the ethical and legal aspects of data sharing. The workshop mapped out existing and emerging solutions in this critical area and will aim to catalyze harmonization of efforts across the various work packages within the EBRAINS 2.0 project.